Walk With Me

It’s my second week of being bed or chair-bound as my foot recovers from a total overhaul. It’s been really inconvenient, but, ironically, it’s give me a chance to take a different kind of walk with one of the best people I know.

This time last year I was still writing mostly about Thing1’s journey with Ulcerative Colitis. We thought, at the time, that journey was almost over and that he was starting a newer, more adventurous one. Then his body recently reminded us that a diagnosis of a chronic illness is a permanent one.

His chronic illness is classified as a disability. It took me a little while to really understand why it’s classified that way, but as I watched his disease derail a year of his education and govern so many other major and minor life decisions, I gained a better understanding of how invisible illnesses can cause impairment. It wasn’t until the last two weeks, however, that I understood how that feels.

As someone diagnosed with bipolar disorder, I can sympathize and empathize with some of the impacts of invisible illness. Depression can impact your ability to function at work and your ability to parent effectively. It does not, however, turn the simplest activities, such as showering, into activities that need extra equipment or preparation. It doesn’t keep you from reaching the microwave. It does not have you planning your schedule when you might want to go to the bathroom next, let alone how to return to work.

Thing1 is less than half my age and wrestled with all of these issues and more in the last few years. These questions have determined where he would live and if he would go to school on any given day. They are determining if he may miss yet another year of school and when he will begin his adult life.

Spending a few weeks navigating the activities of daily living that are usually take for granted has been a pain in the neck, but it’s also given me a chance to walk with T1 in a whole new way.

A Little Night Mania

It’s 2 am and Jim-Bob is trying to decide if his lumpy human will be still long enough for him to pad a nice tummy wallow to sleep on . I’ve tossed, turned, shut off my screen and turned it back on half a dozen times since I first crawled into bed for some desperately needed sleep two hours ago. I know he thinks I’m about to fly right out of the room.

In my head, I’ve been flying for hours.

For hours I’ve been playing with the possibilities in my head. How hard would it be to do two master’s at the same time? I’ll finish the drawings for both books this weekend. I can finish this assignment , design that database and then check another online illustration course. Ooh, that story would be great as an animated cartoon.

For most of the last few weeks, I’ve been still, seeking sleep whenever possible. Depression wraps me up like a wet carpet, and I’ve been a good human to sleep on.

But living with bipolar is like living with a volcano. It rumbles in the darkness until it’s time to explode and let the steam and fire out. Sometime heat is power. It drives me out of bed into my office to write and read and paint. It also, however, can become a wild fire easily out of control, coaxing me to take on more commitments than I handle in a lifetime, spending on things no one ever needs, and torching anything in its vicinity.

So even though the screen is off, Jim-Bob knows my tapping hand is a sure sign the mania is still burning, ready to send this lumpy lady back into space, and he decide to stay put until the fire cools.

It’s Not Them

Winter at Heart

Even shielded from news most of the day because of the internet ban at work, it’s impossible to avoid all awareness of an earth-turned-inferno and humanity’s own seeming desire to immolate itself in war. Sometimes it’s hard not to wonder, “What’s the point?”

But the minute I start asking that question, I know it’s not the news. It’s me.

Hammering out a few words each day has seemed to be a Herculean task, and, until last night, I hadn’t touched a canvas in months. I know that, even though in some cases, things really are that bad for some of the world, right now, depression is warping the lens of my mind’s eye.

Sometimes depression is like seeing through a fog, but there are times when it is like living with a lens stopped down to the smallest aperture. It throws everything into sharp, extreme focus. There are no soft edges. There is no cropping out ugly details that make the world seem like an overflowing landfill that hardly needs anymore pointless paintings or posts.

And I know it’s not the world, it’s me – at the moment.

I like to think the depression isn’t who I am, but it’s been with me, off and on, since I could crawl. It’s at least as much a part of me as being near-sighted, and there are even times I’m glad for the hyper focus (this isn’t one of them).

I was driving home tonight, still struggling for what to paint or draw. I knew my head needs me to but couldn’t reconcile my need with the resources it would use, the waste it might generate, or the pointlessness of making anything.

Usually Facebook is the opposite of an anti-depressant, so it was against my better judgement (already shaky this week) that I launched it on my phone when I got home and sat down to decompress. The first photo that hit my feed, however, was a screenshot of a September tweet from Dan Rather that went like this:

“Somewhere, amid the darkness, a painter measures a canvas, a poets tests a line aloud, a songwriter brings a melody into tune. Art inspires, provokes thought, reflects beauty and pain. I seek it out even more in these times. And, in doing so, I find hope in the human spirit.”

It was one answer to a question I ask all the time – especially when my focus is sharp but corrupted .

Is art selfish?

I know art is therapy – a softening of the lens. When continents really are on fire, when children are living in prisons and adults are making more misery from war, however, I hope for it to be a light in the darkness. For tonight, the hope is enough to let some softness into my view.

Poem – Stopping Down

I stopped all the way down

And now my field is deep,

Focused and sharp,

Too treacherous to roam.

Something New

Depression may inspire creative bursts of energy once it’s gone, but, more often, I’ve found that giving into creativity has to happen before the depression can truly start to recede. Sometimes, that surrender starts with trying something new.

I recently stumbled onto a quote by Plutarch that goes, “Painting is silent poetry, and poetry is painting that speaks.” The quote has been rumbling around in my brain for a few days now, seemingly more accurate each time I recall it.

I often paint because I cannot find words that vent emotions without being destructive. Whether or not it leads to good or bad art is irrelevant. The creating on canvas is the path away from hurt and from hurting others.

Lately, I’ve been writing more and painting less (it goes in cycles), But there are still nights I struggle to distill churning feelings and events into text. Last night, watching our orange tabby embrace his carefree, hedonistic identity and, as always, still wondering about my own, I got stuck between picking up a brush or opening the keyboard. Then, instead of sitting and stewing about it for another half hour until I was too tired to do anything useful, I got up and retrieved a journal from my office and decided to try something new.

I decided to try and make a painting that spoke.

I’ve written maybe three or four poems in the last seven years. It is certainly not a forte. As with the act of painting that leads me away from hurt and hurting, however, trying to write poetry was not about making something good, it was about actively surrendering to creativity.

Poem: The Business of Being

Fat, orange, arranged on the table

Like an idol on an altar,

The tabby invest his life, without reservation,

In the business,

Not of being born or changing or dying

But of being the libertine he is.

And I, still changing, still searching,

Craving substance, loathing indolence but filled with envy,

Can feel the faith of one who’s found

A business of being meant just for him.

Presence

I mentally patted myself on the back as I got out of the driveway only 5 or 10 minutes late. The town was covered with a fresh 6” dusting of snow, and, as I made my way down the mountain and my favorite scene came into view, I had to stop and snap a photo and then remember to breathe again. The world looked – and, thanks also to my cargo, felt – a lot like Christmas, but something nagged at my spirit.

The backseat of my car was filled with orange drawstring knapsacks, each filled with art supplies (art kits) for kids in need. This delivery was different from others I had made in the past because I know the girls who will be receiving the kits. I teach them every day.

About three years ago, I started raising money to buy art kits for kids in foster care and for recently-arrived refugee children. When Thing1 got sick, I pushed pause on the project. This month seemed like a good time to hit play again, even if only for a few days.

Most of our girls are in the custody of child services because of myriad family issues. Some of them may go home for brief holiday visits. There are more than a few girls, however, who will wake up in their dormitories on Christmas morning.

The school works hard to make the season bright for the students, but, as we prepared activities for them, I became much more keenly aware of how many ways this season can be difficult for a lot of people. Almost every movie celebrates this as a season of family, but all of our students are at our school because of family issues. We can’t replace their families, but we can remind them that they are cared for, that they are precious to someone.

I’m giving the art kits anonymously, hoping they get some enjoyment out of them. I know, however, that what these kids need is for the adults in their lives – parents, teachers, caretakers — to be present, physically and emotionally.

They will have caring staff with them on Christmas Day, but, as I’ve heard so many other teachers say over the years, these kids are, in a way, my kids. There’s more than a small part of me that wants to spend some time with them on that day (a few other teachers at school do).

Our family will be out of town with extended family, keeping a biannual tradition, but as I took in Mother Nature’s holiday finery, I made a silent promise to make sure that my next Christmas will include these kids. It will be as much about being present as it is about giving presents.

Saturday Gave Away

Friday the 13th rounded out this last week which also included a full moon and a lead into the upcoming week before Christmas creating what one meme called a “Teacher Trifecta of Terror” (it can be kind of scary for parents too).

Friday was actually pretty lucky for me. There were no meltdowns. Everyone got most of their work done. And, for the first time all week, I got to bed before one in the morning.

Teaching has turned into the toughest, best job I’ve ever had. The nature of our school population combined with a nationwide teacher shortage has translated into opportunities to take on more challenging responsibilities early on in my new career. The only drawback is that, some weeks, everything — creativity, fitness, diet, sleep — gets moved from the backseat to the spare.

Friday night, though, I headed out with a plan. Dinner, then Art, then sleep, followed by a day of creativity on Saturday. But, as I fought my heavy eyelids as I drove home, I felt the itinerary change. I got home and, in between moments of shut-eye interrupted by an iPad or iPhone falling to the floor, I managed to make myself a lovely burnt supper before passing out and bumping the rest of my itinerary to what I promised myself would be a “makers“ Saturday.

I kicked off Saturday, however, with an impromptu contest of “you get up first“ with my husband. After a late breakfast and laundry folding, I was determined to hit the studio. Lethargy has other ideas, keeping me on the couch long enough for the orange cat to settle on my lap (which everyone knows, by law, means staying in that exact same position until kitty is ready to move again). The day was ticking away, and guilt turned into doubt.

The sun set, and after a miraculously unburnt dinner, I thought I had just wasted one of the only unscheduled Saturdays we’ve had in months.

But the funny thing about brains is that letting them nap for a day is a lot like finally getting an overtired toddler to sleep. There’s a lot of fussing getting it to quiet. When it starts to wake up again, it can be disoriented and cranky at first, but then it really starts to acknowledge the recharge and wants to be friends again.

Mine fired up last night again about most peoples normal bedtime. After hours vegetating and dozing in front of the TV, sketchbooks started calling from down the hall. I retrieved a pad and a journal From the studio. For the next hour, my pen scratched, whispering ideas in my ear faster than I could scribble them, and reminding me that sometimes clearing your head — and your day – can be an act of creativity too.

Bodysurfing

Friday night, after a great day at school, I drove home determined to write or paint something. I had gone to bed early each of the previous two nights, and I wanted to make the most of a non-school night. Friday, however, was about to be another part of a nagging pattern.

I got home not long after the sun went down, but, even knowing I would sleep late the next day, I headed right to the electric blanket instead of my studio. Saturday Thing1 came home for an overnight from school, and, even after what would normally be an inspiring evening of dinner and catching up, the light in my studio stayed off after dinner.

I know this pattern. In the past, I have confused this creative coma with fatigue. Now, it may take a few days, but, now, I can see the apathy for the skimming of the Mariana Trench of depression that it is.

Most of the time, writing has enough tow capacity to keep my head over water in spite of a strong under-tow. As long as I create, the gulps of air it generates are enough to deal with the buffeting waves of inexplicable melancholy that, in the past, have had the potential to push me under. When I stop, I sink.

There are times, however, when the waves hit faster than the keyboard or canvases can keep up. These waves don’t stop me from thinking of of anything to write or paint. They hit so hard or fast that I forget that I need or even that want that next page or piece to float above the flotsam.

This morning I got up early for an appointment in town, and every tree in Vermont was bejeweled with frozen mist. The sun shining through through the crystal coating made it feel like I was driving through a set for Dr Zhivago, but, even though I snapped a few bad photos, I knew I wouldn’t paint any of it later.

The bending light, however, refracted through my brain and reminded me that I’m not tired. I’m bodysurfing, and climbing back on top of the waves means ignoring the ‘fatigue’ long enough to snap, sketch or scribe absolutely anything.

Flying in Formation


Even after 49 years, I can still take surprisingly long time to recognize when a manic episode is starting. It’s not telling every person in town I’ll be happy to come over and answer that computer question after work or even right now. It’s not acceding to all of Thing1’s needs and wants for college and groceries. Nor is it when I’m googling every graduate program and trying to turn the lemons of a stable but unsatisfying day job reality into a Tom Collins of academic and professional success by planning a succession of degrees at schools I could never afford and which would have dubious value for a middle age Hausfrau who already has too many responsibilities and dreams.

No, usually it’s about the time I look at my bank balance and say, “Oh shit,” that I realize mania may be in full swing.

Today I was in the shower when I realized I my flight was ending, sending me knocking at the door at the back of my mind. That door is the place I go when the world becomes my demon, often made worse by maniacal flights of fancy. It’s a gateway to a vast, rich fantasy world as layered and complex as the ‘real’ one everyone else lives in. Sometimes I crash through it as I fall out of the stratosphere, other times, I slink through it.

There’s usually no logical reason for the flights and falls. The wrong screw is loosened, and then up and down and up I go until I find a way to pound my octagonal peg of a personality into a round hole of life.

Over the last few years as I’ve become better at managing mania and depression, a few cobwebs have grown over the door. I may peek through but don’t really go inside. That morning in the shower I rinsed the soap from my eyes and found myself fully on the inside, peeking out, but realizing the kids, my husband and my job require active participation in that outside world.

The lifeline back to the other side, this time, came from an unusual source — common sense. It took the form of a small, almost unrecognizable voice in my head.

“Let go,” it whispered.

Those two words were so simple and clear, more meaningful than just saying no to the drug of trying to do everything because it sounds good. Don’t just fly after every idea. Learn to fly with one or two dreams in a single direction.

So the next morning, I looked at all the creative projects I’ve started over the last year.

The words ‘I have an idea’ can strike fear into the hearts of husbands and resignation into mentors. My sun-singed ideas languish in half-filled notebooks and devices. An almost-finished children’s book marinates on my iPad as I view yet another video on how to write children’s books. Another waits to move from the rough sketch book to the painting table. The pages of still another non-fiction book have started forming. Meanwhile, I’m still trying to explode into the sky and catch every idea for a novel or comic book that flutters chaotically over the fields and mountains, often following their trajectory until I’m blinded.

And then, “Let Go” echoed again.

It reminded me that chasing every dream, soaring towards the sun, may make it hard to tell the difference between the glow of opportunity and a goal going up in flames. Letting go means nurturing a few meaningful the ideas that may already be getting off the ground.

So I’m letting go of the degree research and lining up the writing projects so that I can more easily follow one at a time and stay on course. I hope it means I’m learning to fly in formation.

Hand Puppets

elly-web

I met this week with mentor extraordinaire and best-selling author Jon Katz to work on editing and cleaning up my first full fledged book, “A is for All Nighter”. The fate of the book is in flux as we are still working to find an agent for it and for me. I’m finding the advice of a good mentor like Jon is invaluable as I weigh the options of immediate gratification through self publishing or delayed gratification by trying to find a publisher.

So “A is for All Nighter” continues on the next step of the journey, and a new friend came to find me last week. Her name is Élly.  That accent over the E means you pronounce her name “Yelly”.
she’s kind of a loud little troll, and we had a lot to talk about last week. You see, like most people, there’s a lot more to Élly than meets the eye.

The revelations from the presidential campaign that inadvertently focused the national conversation on latent misogyny and consent brought up unpleasant memories for many women I know and for me as well.  Some people are able to talk about those memories, but sometimes, candor carries too high a price. 

Secrecy also carries a high price, however.  In secrecy there is depression and retreat from the blessings in your life.  There is a constant mental rerun of the memories that encourage self-loathing, and, in my case I began to look in the mirror and see a horrible, ugly, little troll.

That’s when Élly showed up.  Apparently she’s been lurking in the inner world I began building when I was two. She’s been just waiting for the right time to set me straight with some truth about bad things that happen in life and about trolls, about whom there is also much misinformation (they live under bridges, they have bad tempers).

So, like a kid talking to a hand puppet in a psychiatrist’s office, I told her why I felt like a troll and she told me why that wasn’t necessarily a bad thing. She talked to me about her life and about the strength you find walking through the tears and emerging on the other side into a life you love. 

Élly was so helpful getting me back on track, that we decided to work on my next project together.  She even helped me find it by suggesting that we work to set the record straight about her kind.  Élly’s doing most of the writing, and I’ll be doing the illustrations, and we hope that in a few months we’ll have a kid-friendly book called The Truth About Trolls

So far she seems happy with the first portrait.

 

Overheard

 I about 15 or 16 the first time I realized that everyone else in the world did not walk around thinking about suicide at least once a day. The revelation came after a school assembly on the subject when our class was herded into separate rooms where intimate groups of 50 or so giggling, super-sensitive teenagers were invited to play a quiet game of True Confession.

The assembly leaders asked us if any of us had ever contemplated taking her own life, and I raised my hand. I was only one dumb enough to do it.  My candor earned me a private session with one of the leaders who assured me I wasn’t normal and offered me a pamphlet to a nearby church. I decided not to tell him about the coupon for the box of sleeping pills that I carried in my backpack every day. I decided not to tell anyone because I already had a few labels at that school – ugly, strange – and I wasn’t excited about adding loony tunes to the list.

A few years and suicide attempts later a shrink helped me pin the manic-depressive (as bi-polar disorder was more commonly called back then) label on myself, but it wasn’t something I wore around in public.  I was worried about being able to get a job. I was worried if I ever had kids, I wouldn’t be allowed to keep them. And I worried I’d be put on some kind of government list.

Now the State of Vermont is getting ready to do just that to people with mental illness.  Under the guise of gun safety and protecting people from themselves, they have pushed a law through the senate that will put people with mental illness who have been deemed (by a court) to be a danger to themselves or others on a special FBI ‘pre-crime’ watch list of people who are not allowed to own guns , even though mentally ill people are rarely violent and many may never actually go to buy a gun.

I got a little nervous when I read this.

I’ve been out about my bi-polar situation for many years. It was harder to hide it than be honest about it, but as anyone whose stood at the kitchen counter, gripping a knife during a manic episode and seeing visions of their own amputated wrist can tell you, being a danger to oneself kind of goes with the manic-depressive territory.  I called a shrink the last time that happened, knowing I would find help and a medication adjustment.  I do know that one thing, however, that would keep me from walking into his office and talking openly about an urge to hurt anyone (myself or anyone else) is the fear of getting on some government list.  It might keep me from going at all.

Now, I’m not saying that if I walk into my shrink’s office next week and tell him that voices from the planet Crapulon have told me to kill everybody whose name ends in ’s’ that he shouldn’t report me and take steps to prevent a clear and present danger to someone else (which, by the way is already the law).  He should probably help me get into an institution at that point which would certainly keep me from getting a gun.

I don’t think, however, someone who has never actually committed a crime should be put into some national pre-crime database simply because they are mentally ill and because they might one day buy a gun.

You can call me paranoid to worry about a government that has never passed a law  data to prevent crime or terrorism that ended up drag-netting the private communications and records of thousands of innocent citizens into databases that kept them from getting on planes or had them erroneously detained without counsel before, if they want off the government watch list, requiring them to prove their innocence (and nobody is innocent) because they’ve been assumed guilty, but in my addle-pated mind, nothing says stigma like putting a mentally ill person into a national FBI database.

Never mind that this doesn’t keep guns out of the hands of mentally ill people living with mentally healthy people – unless we want to add them to the list. It also doesn’t keep hands out of the hands of mentally ill people who don’t seek help because they don’t trust shrinks – unless we just want to add a random 5.3 million people to the list to be on the safe side (Do you feel safer?).  But it does do something.  By creating a special database just for mentally ill people at the nation’s largest crime investigation organization, it is taking the first step toward classifying them (us) as criminals.   Excuse me, pre-criminals.  I’m not sure if that’s much better.

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It’s All In Your Head

soldier on

I started deflating at the beginning of November.

I try not to write about the shrivelling because I don’t want my blog to be therapy (my writing is, but that’s another story for the commitment hearing) or a place to wallow. Sometimes that means I withdraw from it and other things I care about for a while.

The funny thing I’ve discovered about depression is that it’s not always weeks of crying or anguish. Often it’s softer and more insidious. It’s a shrinking from life.  It’s feeling a soft, wet, layered flannel strait jacket wrapping around you and not feeling the muscle power to push it off.  And, for me, it’s a lifetime of wondering why I can’t just shake it off and soldier on.

After all, it’s all my head, right?

If it weren’t for the plastic boot encasing my foot propped up on the pillow-padded recliner, I’d still be wondering that.

But things happen. Sometimes you find yourself surfing a couch for 3 to 8 weeks, ceding control of your life but still telling yourself you should just shake it off.  You tell yourself you can handle the grocery shopping again and that driving home at night with one good eye is just as safe as it was with two eyes right up until you slam on your brakes to narrowly avoid that deer that you swear wasn’t there five seconds ago. And then you find yourself sentenced to another night with your foot in the air and your derriere in the chair because there was a whole lotta shaking going on that day.

Then you realize that you can’t always shake it off because bum legs aren’t necessarily just in your head and, neither, possibly, is a bum brain.  All you can do is ride it out, holding on for dear life and reminding yourself that there will be long, unimpeded walks again.  There may even a time when you can once more differentiate between your bum and your brain which, while it literally is in your head (if you’re lucky), doesn’t really respond well to being shook off.

What Goes Up

what goes up

Sometimes it isn’t a crash.

Sometimes everything just recedes.

You go from feeling everything to feeling nothing. To wondering why you’re here.

To wishing you believed in a higher being that had a purpose for your life and being fine with not knowing what it is because knowing it exists is enough.

To realizing every battle can’t be fought and others can’t be fought at all without ammunition.  To picking the fights of getting up for the job and the kids each day and retreating from the others until the arsenal is stocked with little pills that still need a glowing fuse to work.